I often say that 95% of the world is great to Marcus. Then I do everything I can to protect him from the other 5%. I never dreamed that 5% would include the police. The news about Robert Saylor, who died in police custody, is a nightmare. Every parent, I think, upon seeing a tragic situation wonders, Could this happen to my child? To Us? The press indicated that the police report says the Mr. Saylor, a man with Down syndrome, refused to leave a movie theater, kicked and cursed at the police. While I feel my son would not do this, even in his most stubborn moments, I also fear that perhaps Mr. Saylor did not either. And even if he did…was he so threatening to the police they had to place him face first onto the ground?
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When someone we love is robbed from us, it feels like the world should stop. Actually, it does. For a moment. And we look around us, jealous that others are still living, working and being alive. – From “A Mother’s Tears“
We are nearing the two year anniversary of the death of Ethan Saylor, a man I never knew, but who has been in my thoughts much since I first read his name. Over the last few months Ethan’s name has come into the press with a few mentions as
As a mother, I…
I hardly have the words, and as you have seen, that’s something.
Whenever I pray to whatever it is I am praying to, I pray I never have to show her strength, her commitment, her ambition to continue fighting.
I did not want to share this on the same page as the Ethan’s Law post, it felt a bit like guilt-bribery. Which many of you know I am not opposed to as a general rule, so I recognize it. However, I do want you to see this. So,
What is merely a nightmare to me is truth to another.
Nearly one year ago Patti Saylor drove to a local movie theater to help her son, Ethan, get a new movie ticket or convince him it was time to come home, and by the time she arrived he lay dead on the theater floor.
I do not know Patti Saylor and I never knew Ethan.
I love someone who also could have died in that situation.
The report indicates that Saylor's death by asphyxiation is certified as a homicide because the man would not have died if it weren't for the presence of the officers. In response to a call for an independent investigation, the DOJ representative is quoted as saying, “We’re trying to assess the situation and see how much community tension there is.”
Join us in watching and celebrating this short film written and directed by Michael McNally, a young man with Down syndrome who also happens to be from Omaha and an old friend of Marcus. (What can I say? We know cool people.)
hen I decided to venture out into Blogland, I wanted to share our experiences and teach people, to be positive and tell positive stories. To share the good truths. Also Tragedy Then, just as I entered the blog world, a horrible and preventable tragedy, introduced me to another range of allies and advocates.
OK Everybody, Today is a super cool treat from friends-we-haven’t-met halfway around the world.
Let me first introduce “Celeste.”
Celeste, the person, lives in New Zealand and this film, “Celeste” focusses around her role as an “extra” in her favorite soap opera. I saw this film earlier this year at the Ethan Saylor Memorial Film Festival. I L-O-V-E it! Since then, this short film has won awards around the world and is only one of a series of short films featuring people with disabilities.
I’m not ready for you yet! I had so many good intentions for May, and yet the bills are still scattered on the dining room table, because my office is still in disarray, and even the rebounder trampoline is still covered in papers I meant to get to. Get To. (Sigh)
Ah but June…
I am typing this from my back porch with the birds chirping away. The breeze is ever so slight. There’s not a cloud in the sky and I’m sitting in the shade from a giant cottonwood. My neighbor’s dogs start
In Learning to Drive, Michael has Down syndrome, is determined to deliver his mother’s ashes to the Grand Canyon, and although he has a strong desire to learn, doesn’t have a license to drive.