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What are the Odds – Brian Long

2016-05-05T19:28:46-05:00Categories: Grown Ups & Downs|Tags: , , , , , , |

Brian and Connor Long Brian and Connor Long

Alright kids, another treat today as we continue the What are the Odds? Series Today we’re hearing from Brian Long, self-proclaimed Dadvocate.

First however, I must tell you that one of the inspirations for the What are the Odds? series was me thinking about the odds of having a child with Down syndrome, like, at all. Mark Leach recently (the same day I started this series coincidentally) reshared his What are the Odds post from a

Who do you think you are?

2020-05-23T08:35:30-05:00Categories: Grown Ups & Downs|

I’ll bet this guy never worries about what he’s wearing.

Have you ever heard the phrase…“She’s really got to know who she is to wear an outfit like that!”  Have you ever worn an outfit like that? I’ve seen them in the store and thought I wish I could wear that.

It’s not that it doesn’t fit. (Well, not always that.) It’s often more about the style or the color.

Who do you think you are?

Have you ever written a “Bio?” It’s hard! I have several. When presenting with Marcus there’s a different

A Life Uncontained (And baseball memories with Video)

2019-04-28T12:09:21-05:00Categories: Grown Ups & Downs|Tags: , , , , , , , , |

I’m reminiscing today because later this week I plan to join some business colleagues at a White Sox baseball game, it got me thinking about our few, yet powerful, baseball experiences. Like the time Three years ago Marcus threw the opening pitch at our local baseball field. I think he nailed it. It was a fun game with other DSA families. I also got “locked out” of Facebook that day for sharing too many photos, I guess…? I don’t know, actually, but here’s the video Facebook made anyway

Five Awesome Advocacy Videos – Plus One More!

2019-06-16T10:00:04-05:00Categories: Grown Ups & Downs|Tags: , , , , , , |

From the Many Awesome Videos Shared on or around World Down Syndrome Day 2018 (WDSD18)  

Here are five (plus one) you should check out for sure!

Dear Future Mom

CoorDown has done it again with another original video. These are the folks who brought the world “Dear Future Mom” four years ago. In fact, let’s start with that one because, yeah, you’ll see:


So great.
I will tell you, though, Marcus is not a fan. He feels that the sad music (minor chords, ya know) do not accurately portray the message of the film.

Lea Goes to School

This Year’s

“Learning To Drive” Movie Review, Lessons, and Good News!

2019-06-16T10:01:21-05:00Categories: Grown Ups & Downs|Tags: , , , , , , , , , |

In Learning to Drive, Michael has Down syndrome, is determined to deliver his mother’s ashes to the Grand Canyon, and although he has a strong desire to learn, doesn’t have a license to drive.

Young Actors, Allies, and Awards

2016-03-11T00:21:30-06:00Categories: Grown Ups & Downs|Tags: , , , , , , , |


YAAAs a child, I was told that a hummingbird shouldn’t be able to fly. I was told that, scientifically, it’s a bizarre phenomenon. Therefore, being an early lover and adapter of metaphor, I always considered the hummingbird to be the perfect example of being able to do something better if you don’t think about it. Now, I don’t know if the bit about the hummingbird is true, and I don’t want to, because I like the metaphor.

Young Artist Awards

This Sunday is

Menschen, Arc, and More Marcus

2017-09-02T13:05:20-05:00Categories: Grown Ups & Downs|Tags: , , , , , , , |

Connor Long and the cats of Menschen Connor Long and the cats of Menschen

So we got to see Menschen the movie on the big screen.

I wrote my original review and all subsequent rants after seeing it on the small screen of my computer. Seeing it in a theater environment, as it was intended, moved me in new ways. One reason, because I felt like, up to this point, I held a secret that I was just bursting to share. I delighted

The Best Video You WIll See Today!!!!!

2015-05-02T12:44:49-05:00Categories: Grown Ups & Downs|Tags: , |

Alright Friends – I mean it.

Step 1) Watch this Video



SMarcus and Connor Longtep 2) Go to Indie GoGo Check out this project, Learning to Drive.


Step 3) Give yourself a gift. Donate what you can.

*For example, Only $30 donation helps the cause and get YOU a copy of the movie and soundtrack (digital) upon release! It’s really like a preorder.


Step 4) If we all do step 1-3 – step 4 is SEE THE MOVIE. 🙂


More details forthcoming.


PS: Optional Step 2.5)


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