banner_imgbanner_img Mardra SikoraMardra Sikora

Archive for the ‘Grown Ups & Downs’ Category

#Giveaways to Get In On

OK! There are a few awesome giveaways going on in honor of #WDSD16 that you don’t want to miss out on! One) Reasons to Smile: New book review and Giveaway. This one ends soon – so don’t delay! “SO Many Reasons to Smile” Here.  Two) The Parent’s Guide to Down Syndrome Grand Prize Giveaway has […] more

Our Story of Down syndrome: The Short Version

For the first 21 years or so of Marcus’ life,  “Down syndrome” didn’t really come up, and I kept our privacy setting as restricted. Not that I was hiding, I just wasn’t sharing. Why? Well, one reason is because most of those years were pretty, how shall I say this? Boring. Not to me, you […] more

Do I wish I’d Known?

Options There have been many big changes up to this point in my life because I’m lucky enough to have had opportunities, I’m lucky enough to have taken risks, and I’m lucky to have lived this long. For me, change is often a matter of taking or creating options. Even as a young child, there […] more

The Children’s Book Review – Review

Check out the front page of the website The Children’s Book Review and you will get a peek of Black Day: The Monster Rock Band. And what’s more: A Giveaway! SO please, enter in and tell your friends to check it out. Seriously. Tell. Everyone. Thanks! The Children’s Book Review Review of Black Day is here. […] more

Break the Parenting Mold and Advocacy

Hello Friends! For this week Words in the World Wednesday – I’d like to introduce you to a new website for parents. Break the Parenting Mold launched March 1st and is preparing to help folks: Whether they need a laugh, a reminder that they’re not alone, recipes, or ideas on sensory play, Break the Parenting […] more

SO Many Reasons to Smile!

. Happy Book Birthday to a new addition to the Down Syndrome Community of Stories! . I’m pleased to be a contributor to the recent collaboration Schiffer Publishing assembled called Reasons to Smile.  . I’m just going to start with my one concern, going in, I worried that the title may lend itself to cliche’ – […] more

A Fable about “Life as Planned”

Once upon a time, three friends went to lunch. They chatted in pursuit of solving the problems of the world and hypothesizing their place in it, as friends at lunch are prone to do. In what is often the triangle of lady friends, their summed up personalities were these: the moderator, the know-it-all, and the undecided.

These women were young, unattached to life’s burdens and at the crux of their futures.

When the question of children arose, all three looked forward to the experience. Surely each would moderate, commandeer, or follow lovingly along (whatever the case may be) into marriage and family. more

We Did It! (Part One)

… Last Thursday Marcus and I went to our state capitol building and testified in support of LB891: The Down Syndrome Diagnosis Information & Support Act. … I’d like to ramble to you a minute about my own state of mind and lucky coincidences, then I will share what Marcus and I each shared as […] more

Down Syndrome Diagnosis Information & Support Act Testimonies

OK Kids! Down Syndrome Diagnosis Information & Support Act This legislation would make available to expectant and new parents, upon receiving a diagnosis of Trisomy 21 (or Down syndrome) from their health care facility or practitioner, educational and supportive information provided by the Nebraska Department of Health and Human Services in conjunction with local and […] more

#WDSD16 The Parent’s Guide to Down Syndrome Book Tour & Giveaway

We are super excited to kick off March 2016 and the #WDSD16 buildup with another virtual book tour of The Parent’s Guide to Down Syndrome, complete with another grand prize giveaway! Woop Woop!                 . . . The Parent’s Guide to Down Syndrome: Advice, Information, Inspiration, and Support […] more