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Archive for the ‘Grown Ups & Downs’ Category

The Human Trisome Project: Are You Ready?

I am not a trained medical professional or scientific-terminology inclined. I am, however, a parent. Which for many people is the catalyst into an array of verbiage regarding anatomy, new medical issues, etc. For me, that’s when I began to learn about genetics and diagnoses previously unknown (or little known) to me. As I became […] more

When Don’t Panic Meets Brian Wilson

  No, it’s true. Kind of all over the board, again.  On my write-about-to-do list: Alzheimer’s Disease and research, Marcus is honored by the Rise Awards, so many friends doing super cool stuff, self-advocates being publicly (and wrongly) “put in their place,” IQ cans and cant’s, how is cant’s supposed to be spelled, when cans […] more

Cabaret Broke Me And Then

Don’t tell me it’s “just a show.” The threat that there are humans who desire to eliminate those who are, “nothing like the rest” is and always has been real. more

Amazing Closure to Heart Surgery Over 20 Years Ago

. SO, like everyone I know, I’ve got a lot on my mind today. There are many words I hoped to put on paper today, in some fabulous order that would change the world, or at the very least entertain, educate, or inspire.  Instead, I’m too full.  My brain is too busy.  It happens. Marcus […] more

Shrek: Truth and Tickets Giveaway

The Rose Performing Arts for Children and Families in Omaha Presents Shrek The Musical. Shrek is a crowd favorite in the Sikora home. In fact, it was just featured prominently in the session Marcus and I just gave this weekend, “Storytelling as Advocacy.” We shared the key components to a good story in addition to how […] more

Empathy & Inclusion, Is it Equal or Is it Fair?

1 in 700 When my son was born I read that 1 in 700 babies are born with Down syndrome. That statistic reassured me. I mean, that’s a lot of people. Surely every American at least knows someone who knows someone with Down syndrome. It turns out, The Global Down Syndrome Foundation says that 38% […] more

A Short PSA to New Parents of a Child with Ds

. The Best Days Start with PBJ Saturday launched with a peanut butter sandwich in Times Square, where we met many friends, some of which we knew before we got there, but not all. Then we watched a big screen in the city that never sleeps and saw babies we “awwwwed,” people we “Cool!”-ed, and […] more

Sometimes Opening Minds Is Best Handled as a Soft Sell…

Welcome to a #TBT (Throw Back Thursday) of a Free Write Friday, Free Write Friday is where I let loose on the reins and just type for 15 minutes about what I’m thinking and what’s going on. This post I am sharing today was originally published one year ago, Sept 4, 2015, just as Marcus […] more

Have You Seen This AWESOME Animated Short Trailer? (65 second Video)

  The Halloween candy hit the display shelves. That’s our cue… Halloween may never be the same again. Have you told your friends? You can get your own copy of the book and animated short HERE, and request an autographed copy, too! Amazon carries the book only: Black Day: The Monster Rock Band and ASK YOUR […] more

What I Learned in Bedford, IA, at a Back To School Bash

Yesterday, Hedgie’s Books and Toys in Bedford, IA, hosted a fun and well attended “End of the Summer Monster Bash” in honor of the last weekend before back to school. The event featured Black Day: The Monster Rock Band.   Every reading and book event is unique. You never know who or how many people […] more