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Archive for the ‘Grown Ups & Downs’ Category

The New Year’s Rant

. The last few years I’ve chosen to gulp up life, racing like I’m running out of time. I do feel that way. I don’t know what’s next (after this life) but I know the time we have here is precious and brief and for reasons I cannot explain, I am compelled, pushed, to make […] ...read more

Our Living History

10 years ago, I was the customer service and marketing manager in the family print shop and Quinn and I celebrated our 10-year wedding anniversary with a delightful party at the Joslyn Art Museum and I wore a fabulous dress. I celebrated a breakthrough in my health and was in the few “perfect weight” years […] ...read more

Year End and Christmas Letter Time!

Christmas letter time!! Every time I create a Christmas letter, I think about all of you. I think about all I wish you were telling me about your life, your families, your year. Some of you send Christmas letters, too. Which I love and enjoy! This year I’m going to make it really easy on […] ...read more

The Reply Christmas Letter

Hello! I can’t wait to hear from you! ...read more

On Rainy Days and Learning to Live in the Moments

. You never know… Sitting with another mother at the Be Beautiful, Be Yourself Fashion Show, talking about Marcus’ and my crazy schedule this year. I told her, “I debated whether we should push it and do this. So much else going on. But then I thought, Don’t wait. You never know what the next […] ...read more

Last Weekend, We Were All Beautiful, with Video to Prove it

Last Sunday morning I “wrote out” some of the preceding three days’ amazingness. Unsuccessfully. Bullet point version: Wed night after work: Marcus and I flew to Denver. Thursday morning: Marcus went on Live TV.  Friday Morning: Marcus and I both gave blood to the Human Trisome Project.  Friday Night: VIP Party with super cool and […] ...read more

The yesterdays that have magically led to tomorrow

Hey everybody, Tomorrow, no, let’s start with today. Wait. Yesterday. Yesterday, Marcus was featured as a model on live television as a preview for a big event that is tomorrow. This is an event he has auditioned for three times. Well, to be honest, this year his audition was actually being part of a celebrity […] ...read more

The Human Trisome Project: Are You Ready?

I am not a trained medical professional or scientific-terminology inclined. I am, however, a parent. Which for many people is the catalyst into an array of verbiage regarding anatomy, new medical issues, etc. For me, that’s when I began to learn about genetics and diagnoses previously unknown (or little known) to me. As I became […] ...read more

When Don’t Panic Meets Brian Wilson

  No, it’s true. Kind of all over the board, again.  On my write-about-to-do list: Alzheimer’s Disease and research, Marcus is honored by the Rise Awards, so many friends doing super cool stuff, self-advocates being publicly (and wrongly) “put in their place,” IQ cans and cant’s, how is cant’s supposed to be spelled, when cans […] ...read more

Cabaret Broke Me And Then

Don’t tell me it’s “just a show.” The threat that there are humans who desire to eliminate those who are, “nothing like the rest” is and always has been real. ...read more