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Archive for the ‘Grown Ups & Downs’ Category

What I Learned in Bedford, IA, at a Back To School Bash

Yesterday, Hedgie’s Books and Toys in Bedford, IA, hosted a fun and well attended “End of the Summer Monster Bash” in honor of the last weekend before back to school. The event featured Black Day: The Monster Rock Band.   Every reading and book event is unique. You never know who or how many people […] ...read more

Marcus is honored Alumnus of the Year (Video)

I inserted closed captioning – if it doesn’t default, be sure to click on it for Marcus’ speech. I think you can see, he had a great night!   ...read more

5 Songs to Encourage Your Bless-ed AdventureS

It’s my birthday week and I’m contemplative. Having an August birthday comes with the “end of summer” and always feels a little like Lana’s, that “Summertime Sadness.” You know, melancholy with a touch of let’s-live-while-we-can feeling. (Plus it has the line, “You’re the best, baby” which, of course, makes me think Marcus wrote bits of […] ...read more

The Night I Spoke the Words

I often filter my words, try to cook them down to the best bits, and parcel out what I share in any given story, however, sometimes, when I do not parcel, the words hit their mark. The point is made because the truth stands unfiltered. “What is most personal is most general.” – Carl Rogers. […] ...read more

Coming Out of the “Special School” Closet (Again)

Let’s talk a little about my view from the private-special-school-closet where I wave outside but often wait to tell other advocates/parents of our choice to enroll Marcus in a “special school.” Benefits of Inclusion in the Public Schools   I admit, there is absolutely no doubt, inclusion of students with special needs in the general-ed […] ...read more

What No One Told Me About NDSC Conventions

I said Marcus would Never… Five years ago I wrote in an article that published in the Omaha World Herald that Marcus would never live independently. I did. I said it like an undeniable fact. Then Again… Two years ago I wrote, “Marcus Talks about Moving Out.” This last weekend I recognized in him even […] ...read more

This Summer – Are You Kidding Me?

First Pitch Last night Marcus threw the “first pitch” at our local baseball field, home of the Omaha Storm Chasers. Our DSA, the Down Syndrome Alliance of the Midlands, invited him to represent. (He took the position seriously check out the fun video at the end of this post of his prep and pitch.)  This Summer […] ...read more

Where Marcus talks about Me

  Marcus isn’t always great at direct question and answer. Prepositions and pronouns are sometimes hard for him to grasp and answer. Directions like up/down/under…are very hard for him. However, he’s very good at grasping abstract thought, he has communicated/shown me this for years in ways broader and bigger than just words. This is part […] ...read more

Time’s Up (and Down Syndrome)

What I wanted to know for just five minutes on June 21st is what I should be trying to say now. Breathe. Embrace. Capture. Laughter. A love like you’ve never known will hold you for the rest of your days. Many people live their whole lives not knowing why they were born, June 21st 1990 was a blur but it was only one day after you found your purpose. It was the day after you found out your beautiful son was born with Down syndrome. ...read more

Can a Person with Down Syndrome win a Tony Award?

. “What is your goal?”   The keynote speaker, Dakota Johns, asked in his speech, then he asked us to share this goal with those sitting around us.  One person at our table said, “To write a book,” another said, “Take a family vacation.” My son, Marcus, said, “To win a Tony Award.”   This […] ...read more