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Archive for the ‘Grown Ups & Downs’ Category

Year End and Christmas Letter Time!

Christmas letter time!! Every time I create a Christmas letter, I think about all of you. I think about all I wish you were telling me about your life, your families, your year. Some of you send Christmas letters, too. Which I love and enjoy! This year I’m going to make it really easy on […] ...read more

On Rainy Days and Learning to Live in the Moments

. You never know… Sitting with another mother at the Be Beautiful, Be Yourself Fashion Show, talking about Marcus’ and my crazy schedule this year. I told her, “I debated whether we should push it and do this. So much else going on. But then I thought, Don’t wait. You never know what the next […] ...read more

Last Weekend, We Were All Beautiful, with Video to Prove it

Last Sunday morning I “wrote out” some of the preceding three days’ amazingness. Unsuccessfully. Bullet point version: Wed night after work: Marcus and I flew to Denver. Thursday morning: Marcus went on Live TV.  Friday Morning: Marcus and I both gave blood to the Human Trisome Project.  Friday Night: VIP Party with super cool and […] ...read more

The yesterdays that have magically led to tomorrow

Hey everybody, Tomorrow, no, let’s start with today. Wait. Yesterday. Yesterday, Marcus was featured as a model on live television as a preview for a big event that is tomorrow. This is an event he has auditioned for three times. Well, to be honest, this year his audition was actually being part of a celebrity […] ...read more

The Human Trisome Project: Are You Ready?

I am not a trained medical professional or scientific-terminology inclined. I am, however, a parent. Which for many people is the catalyst into an array of verbiage regarding anatomy, new medical issues, etc. For me, that’s when I began to learn about genetics and diagnoses previously unknown (or little known) to me. As I became […] ...read more

When Don’t Panic Meets Brian Wilson

  No, it’s true. Kind of all over the board, again.  On my write-about-to-do list: Alzheimer’s Disease and research, Marcus is honored by the Rise Awards, so many friends doing super cool stuff, self-advocates being publicly (and wrongly) “put in their place,” IQ cans and cant’s, how is cant’s supposed to be spelled, when cans […] ...read more

Cabaret Broke Me And Then

Don’t tell me it’s “just a show.” The threat that there are humans who desire to eliminate those who are, “nothing like the rest” is and always has been real. ...read more

Amazing Closure to Heart Surgery Over 20 Years Ago

. SO, like everyone I know, I’ve got a lot on my mind today. There are many words I hoped to put on paper today, in some fabulous order that would change the world, or at the very least entertain, educate, or inspire.  Instead, I’m too full.  My brain is too busy.  It happens. Marcus […] ...read more

Shrek: Truth and Tickets Giveaway

The Rose Performing Arts for Children and Families in Omaha Presents Shrek The Musical. Shrek is a crowd favorite in the Sikora home. In fact, it was just featured prominently in the session Marcus and I just gave this weekend, “Storytelling as Advocacy.” We shared the key components to a good story in addition to how […] ...read more

Empathy & Inclusion, Is it Equal or Is it Fair?

1 in 700 When my son was born I read that 1 in 700 babies are born with Down syndrome. That statistic reassured me. I mean, that’s a lot of people. Surely every American at least knows someone who knows someone with Down syndrome. It turns out, The Global Down Syndrome Foundation says that 38% […] ...read more