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Archive for the ‘Grown Ups & Downs’ Category

Marcus & the Loud Mouths Festival

   Marcus enjoys both watching theatre and participating. It all began as a small child, when he would act out entire TV shows, movies, and ideas in a combination of pantomime and song. Now, as a young adult he pursues more public shows. The Ollie Webb Center in Omaha has a program called The Art […] ...read more

On Becoming Marcus’ Mother

The sun shone in through the small hopper window near the ceiling. I woke up slowly and watched the sun beams that drifted to the floor. I knew it. I was a mother. From the outside I did not look…ready.

In my heart, I was. I smiled. I quit smoking.

The next week I went to the Doctor’s office for a pregnancy test. I didn’t bother buying one from the store because, well, as I said – I knew.

The test came back negative. The nurse and I spoke a bit about why I thought I was pregnant, her head shook dismissively as she wrote in the chart. I began eating lemons, friends looked at me and shrugged. Three weeks later I bought a pregnancy test at the drug store and it confirmed my knowledge. I returned to the doctor.

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Marcus’ Big Announcement Number Two (with video)

Hello Friends, Can you believe that the excitement keeps coming? Here’s another exciting event coming up:   From the Global Website: More about the Be Beautiful, Be Yourself Event here. And, the story of Marcus taking on the Universe, suitable for sharing, either here on the website or Here on the HuffPost.     If […] ...read more

Everyone Needs Help

A Gift From the Universe to Change the World My son, Marcus, and I have had many writing sessions and meetings with collaborators at our neighborhood coffee shop, particularly while we were working on his first book for children and the accompanying animated short. We also wrote the speech we gave at the United Nations […] ...read more

I Will Not Let Spring Break Me

  Although it tries. Spring and Easter, Man, a lot of shit happened in my life around Easter. Grandmas Several years ago at this time of year, I lost my Grandma Wright at the end of a long cancer battle. Her death came shortly after my beloved great-grandmother from my mother’s side also passed away. One […] ...read more

Special Chronicles PodCast

While Marcus and I were in NYC, we joined Dan via technology, and chatted about WDSD, Black Day, The Parent’s Guide to Down Syndrome, and also the #NotSpecialNeeds campaign. Pop it in while you’re running, walking, cleaning the house, or whatever it is you do while listening to a podcast. 🙂 In preparation, watch the […] ...read more

#WDSD17 More deets from the day and pictures, too

So first we have the Storified version with my tweets and also the WDSD Twitter live account of our speech. Plus links to a few of the great #WDSD17 videos. Also, a short slideshow of pictures. ...read more

Marcus Makes the Most of Every Meeting

On Tuesday, March 21st, we met people from around the world. Marcus gave copies of Black Day: The Monster Rock Band to a person with, or a family member of a person, with Down syndrome from Italy, Algeria, Mexico, Canada, and the US.  World Down Syndrome Day at The United Nations We listened to the […] ...read more

The Video Of Marcus Speaking at the United Nations

For real. . . . If you want #BlackDayBook and Grown Ups and Downs updates, not too often – I promise, Join the Club here! . Here’s What We Said. Listening to Self-Advocates: Relate, Respond, and Amplify (Marcus parts in bold) Ladies and Gentlemen, I’m Marcus Wright Sikora.   I wrote a book called Black […] ...read more

Marcus and Moving Mountains

This last Tuesday Marcus and I travelled to Bennington, NE. We shared the animated short and book Black Day: The Monster Rock Band with the students. The kids were all in their pajamas as it was “pajama day.” And also Dr. Seuss week. So the PTO invited a local author in to tell his story.  […] ...read more