Marcus isn’t always great at direct question and answer. Prepositions and pronouns are sometimes hard for him to grasp and answer. Directions like up/down/under…are very hard for him. However, he’s very good at grasping abstract thought, he has communicated/shown me this for years in ways broader and bigger than just words. This is part […] ...read more
What I wanted to know for just five minutes on June 21st is what I should be trying to say now.
A love like you’ve never known will hold you for the rest of your days.
Many people live their whole lives not knowing why they were born, June 21st 1990 was a blur but it was only one day after you found your purpose. It was the day after you found out your beautiful son was born with Down syndrome.
. “What is your goal?” The keynote speaker, Dakota Johns, asked in his speech, then he asked us to share this goal with those sitting around us. One person at our table said, “To write a book,” another said, “Take a family vacation.” My son, Marcus, said, “To win a Tony Award.” This […] ...read more
Yes, the day of Marcus’ first photo shoot was a little stressful, in a good way. Read all about how it went here: Carlos Gonzalez Paired Up with Marcus Sikora for a Home-Run with the Global Down Syndrome Foundation And here’s the Behind the scene’s video! More about all of this to come! ...read more
Friends, this post is where I will talk about Crave after attending a complimentary sampling of food and wine. Some lucky person will win a Giftcard provided by Crave. And in case we’ve never met before, here’s where I assure you that all opinions are my own. If we have met, you’d know I […] ...read more
NYC for #WDSD16 SO it’s already been about two months since WDSD. I took notes, as I do, while we were there but I also wanted to stew in them a minute, simmer into my consciousness a little from life in the city full of every language, highest of highs and lowest of lows, decadence, poverty, […] ...read more
The British Invasion! This is where you realize what a celebrity website this is, cause last week we had rock star authors and this week, we enjoy the British Invasion! Our friend, Hayley, the mum from Downs Side Up (who has recently been to tea at the palace, HALLO!) is here today to play the […] ...read more
Our next guest in the What Are the Odds game is another new friend who I clearly have so much in common with 1) We both have an adult son with Down syndrome. 2) We both had endometriosis, it sucked, we’ll leave it at that and 3) we both have 2 cats. From there, well…the […] ...read more
Alright kids, another treat today as we continue the What are the Odds? Series Today we’re hearing from Brian Long, self-proclaimed Dadvocate. First however, I must tell you that one of the inspirations for the What are the Odds? series was me thinking about the odds of having a child with Down syndrome, like, at […] ...read more
The Message that The Internet is Forever… Yesterday I met a mother whose middle son died by suicide. She bravely shared about his life cut short because of two bad decisions. At some point last year he took an inappropriate picture and shared it, privately. When that picture became public, after being tormented with the possibility […] ...read more