The morning we headed back from our “Doctor Road Trip,” I decided to stop at the Waffle House® before hitting the road. If you are unfamiliar with Waffle House® let me lay out the scene: This, shall I say iconic, restaurant chain exists almost exclusively south of Nebraska. It began in 1955 and the design has not changed since, or so it appears. The front is generally all windows with an exterior that has the impression of a double wide and may very well have been rolled in ready to go. Generally, at least one lettered light is out at any given time on the tall sign out front, I suspect it’s a company policy. All the food is cooked to order and all of the cooking is done right there, in front of you- if you’re sitting at the counter. Not Genji style. Diner style; with hashbrowns and eggs and steaks and burgers and bacon and waffles. Now, if you have a kitchen, and I hope you do, and you’ve cooked bacon and sausage and hashbrowns and all of that good stuff, you may have noticed that grease tends to float through the air and cling to any spot it finds handy. Consequently, having an open kitchen may give an air of security to the consumer’s feeling of food safety, you know, by having your pork chops being prepared right there where you can see them fried up, however there are other effects to the overall ambience of the place. Mostly the grease .. read more
Loving, wishing, moving, riding, needing… What lovely and powerful words. These words are a gift from two lovely bloggers, Harvesting Kale and Ot & Et, who host a link-up asking for where these words take you right now. This week has been a mash-up of these emotional verbs. On the drive Marcus sat, riding in […].. read more
1 in 700 When my son was born I read that 1 in 700 babies are born with Down syndrome. That statistic reassured me. I mean, that’s a lot of people. Surely every American at least knows someone who knows someone with Down syndrome. It turns out, The Global Down Syndrome Foundation says that 38% […].. read more
At 7 months pregnant, there came a night when I woke up in terrible pain. I climbed into our stick-shift car, which I did not know how to drive, and started down the road. It wasn’t pretty and probably didn’t sound too good, the car either, but we (the car and I) got to the hospital in time for me to pass out in a wheelchair just inside the emergency room doors. That was nearly 23 years ago.
Two months later I gave birth to a beautiful boy and I still find myself winging it.
My son has grown up to be an amazing young man. He loves his job, attends acting classes, hopes to put his own musical on Broadway, and doesn’t seem to mind that he has an extra chromosome in his DNA.
I didn’t know how to raise a child with Down syndrome any more than I knew how to drive a stick-shift. But we’ve cruised through the years, pushed over a few roadblocks and taken several detours. We’ve learned many lessons that have been more special than the needs.
The stories from the early years and the joys and challenges of today are featured in the Grown Ups & Downs blog. Check out some of the resources and on-line friends we’ve made. Wander back to the middle-ages and meet a special Prince from the forthcoming novel The Innocent Prince. And, of course, join the conversation on any of our social plugins.
See you soon,