Today – we’re going to talk about fashion. Marcus’ new Downs Designs jeans and his model audition I am not a talented “Suzie-homemaker,” which I perceive as someone who can wallpaper and sew and serves a “complete breakfast” every morning, and so on. When house-shopping I said to the realtor, “If the word potential […].. read more
Last Sunday I got one of those calls that turn your life inside out for a while. It, fortunately, did not end in tragedy – just chaos for my plans. Ahhh plans. Such a neat idea. In the interest of only 15 minutes for the Free Write Friday, I’ll skip to the short version which […].. read more
June 20, 1990 I had been awake for well over 24 hours, the little man having taken his time to push his way from my body’s protection. G, Marcus’ original dad, was in the room with me when the doctor came in and said, “Down syndrome.” I do not remember him being brash or unkind. […].. read more
Currently I’m managing to keep my nose above water with deadlines and finances – but I wish I was a better swimmer. I know, I know, if I didn’t jump into the deep-end and take on the rough waters every time, maybe I would be sailing along instead. I can’t help it! I just know […].. read more
At 7 months pregnant, there came a night when I woke up in terrible pain. I climbed into our stick-shift car, which I did not know how to drive, and started down the road. It wasn’t pretty and probably didn’t sound too good, the car either, but we (the car and I) got to the hospital in time for me to pass out in a wheelchair just inside the emergency room doors. That was nearly 23 years ago.
Two months later I gave birth to a beautiful boy and I still find myself winging it.
My son has grown up to be an amazing young man. He loves his job, attends acting classes, hopes to put his own musical on Broadway, and doesn’t seem to mind that he has an extra chromosome in his DNA.
I didn’t know how to raise a child with Down syndrome any more than I knew how to drive a stick-shift. But we’ve cruised through the years, pushed over a few roadblocks and taken several detours. We’ve learned many lessons that have been more special than the needs.
The stories from the early years and the joys and challenges of today are featured in the Grown Ups & Downs blog. Check out some of the resources and on-line friends we’ve made. Wander back to the middle-ages and meet a special Prince from the forthcoming novel The Innocent Prince. And, of course, join the conversation on any of our social plugins.
See you soon,