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Our Amazing Adventure

To my son Sometimes, the dreaming, the planning, and the anticipation that build up a destination are all part of the excitement. Other journeys take unexpected turns, are filled with surprising delights, and have anxious moments. They lead us out of our comfort zones, seeing, touching, and exploring worlds new to us. Our journey so […].. read more

Here Are Links to the Huffington Post Blogs

Hello Friends, Here we go!   Everyone Needs Help A Gift From the Universe to Change the World Birth stories that are combined with diagnosis stories are almost always a mix of fear, motivation, maybe panic, and most often a deep well of newly discovered, unconditional love. The feeling, when I held my newborn son, […].. read more

If You’re Worried About a World Without Down Syndrome, Read This and Share

My Most Important Job Roughly 27 years ago the universe looked over my resume, took into account my previous experience, my qualifications, and my goals and gave me a job that I was totally – I mean utterly – unqualified for. Parent. And as an added bonus and complete surprise, the universe also immediately promoted […].. read more

Celeste is Brilliant – That is all

OK Everybody, Today is a super cool treat from friends-we-haven’t-met halfway around the world. Let me first introduce “Celeste.” Celeste, the person, lives in New Zealand and this film, “Celeste” focusses around her role as an “extra” in her favorite soap opera. I saw this film earlier this year at the Ethan Saylor Memorial Film […].. read more

The Letter that Rocked my World

Last week Google led me to a letter written by a 6th grader that rocked my world. The letter was a state level winner of the Letters About Literature contest sponsored by the Library of Congress. It was written to author Beth Vrabel about her book, Pack of Dorks.  I was previously unaware of this […].. read more

Welcome

Mardra&MarcusAt 7 months pregnant, there came a night when I woke up in terrible pain. I climbed into our stick-shift car, which I did not know how to drive, and started down the road. It wasn’t pretty and probably didn’t sound too good, the car either, but we (the car and I) got to the hospital in time for me to pass out in a wheelchair just inside the emergency room doors. That was nearly 23 years ago.

Two months later I gave birth to a beautiful boy and I still find myself winging it.

My son has grown up to be an amazing young man. He loves his job, attends acting classes, hopes to put his own musical on Broadway, and doesn’t seem to mind that he has an extra chromosome in his DNA.

I didn’t know how to raise a child with Down syndrome any more than I knew how to drive a stick-shift. But we’ve cruised through the years, pushed over a few roadblocks and taken several detours. We’ve learned many lessons that have been more special than the needs.

The stories from the early years and the joys and challenges of today are featured in the Grown Ups & Downs blog. Check out some of the resources and on-line friends we’ve made. Wander back to the middle-ages and meet a special Prince from the forthcoming novel The Innocent Prince. And, of course, join the conversation on any of our social plugins.

See you soon,

Mardra Sikora



Grown ups and downs

Grown ups and downs

Mother Nature gives, most of the time, about 9 months to prepare for a baby. Still, I had only a bassinet and a few baby blankets in preparation of my son’s birth.

The march of time gives us 21 years before our children are considered “adult.” My son is nearly 23 years old. He has Down syndrome and I may yet figure out “the system,” for better and worse.

For now we have 23 years of stories to tell and new lessons to learn every day. Join us out of curiosity, empathy, research. It’s all good.

We’re here to share and show that the lessons are more special than the needs...read more

The Innocent Prince

and other fiction...

Explore Carmus the Island Kingdom. Visit the Garden of Eden. Journey into the not –to-distant future where the value of life is predetermined by…

Sometimes there’s only time for something short, something you can read in a flash. Or poetry.

Enter the world of the fairies that, “…blossoms in green hues that begin as light as the daybreak and soon deepen to support the spectrum of color covering the land.”

Wait quietly under the willow tree anticipating the invisible storm, wait longingly to feel your pages turned, daydream a hero’s beginning and a hero’s end. Meet a story-teller, a healer, an orphan, a duke -

Words from all of these worlds come out from the shadows when you sign in to follow The Innocent Prince and other fiction....read more