Hello Friends, Here we go! What a Storyteller with Down Syndrome and Bedford Iowa Teach the World You Never Know… Every reading and book event is unique. You never know who or how many people will show up. It’s the nature of the book-promoting-beast. In this case, folks came from miles around, ready for Marcus […].. read more
1 in 700 When my son was born I read that 1 in 700 babies are born with Down syndrome. That statistic reassured me. I mean, that’s a lot of people. Surely every American at least knows someone who knows someone with Down syndrome. It turns out, The Global Down Syndrome Foundation says that 38% […].. read more
. The Best Days Start with PBJ Saturday launched with a peanut butter sandwich in Times Square, where we met many friends, some of which we knew before we got there, but not all. Then we watched a big screen in the city that never sleeps and saw babies we “awwwwed,” people we “Cool!”-ed, and […].. read more
Welcome to a #TBT (Throw Back Thursday) of a Free Write Friday, Free Write Friday is where I let loose on the reins and just type for 15 minutes about what I’m thinking and what’s going on. This post I am sharing today was originally published one year ago, Sept 4, 2015, just as Marcus […].. read more
At 7 months pregnant, there came a night when I woke up in terrible pain. I climbed into our stick-shift car, which I did not know how to drive, and started down the road. It wasn’t pretty and probably didn’t sound too good, the car either, but we (the car and I) got to the hospital in time for me to pass out in a wheelchair just inside the emergency room doors. That was nearly 23 years ago.
Two months later I gave birth to a beautiful boy and I still find myself winging it.
My son has grown up to be an amazing young man. He loves his job, attends acting classes, hopes to put his own musical on Broadway, and doesn’t seem to mind that he has an extra chromosome in his DNA.
I didn’t know how to raise a child with Down syndrome any more than I knew how to drive a stick-shift. But we’ve cruised through the years, pushed over a few roadblocks and taken several detours. We’ve learned many lessons that have been more special than the needs.
The stories from the early years and the joys and challenges of today are featured in the Grown Ups & Downs blog. Check out some of the resources and on-line friends we’ve made. Wander back to the middle-ages and meet a special Prince from the forthcoming novel The Innocent Prince. And, of course, join the conversation on any of our social plugins.
See you soon,