AIMS The best way to hear a new album is on a road trip. Or, barring that, a midnight drive. In circles if necessary. Nothing beats hearing a melody pushing your mind and a beat pulse through you while driving down the highway. Lyrics hit you in a space where you can hear them ; […].. read more
. I think the whole community is still recovering from #WDSD14 Seriously, after so much awareness building, advocacy pounding and learning – Oh the learning! – I think the whole DS community has quieted a minute to recover. At first it’s energizing and now…I’m tired. Let’s all take a deep breath. Take a minute to […].. read more
Brain Health Isn’t all Work I remember adults saying to my brother, “How come you can remember every line to Star Wars, but you can’t remember your spelling words?” I always thought that was, well frankly, a stupid question. Because clearly, he didn’t care about the spelling words and he cared about Star Wars…duh, […].. read more
At 7 months pregnant, there came a night when I woke up in terrible pain. I climbed into our stick-shift car, which I did not know how to drive, and started down the road. It wasn’t pretty and probably didn’t sound too good, the car either, but we (the car and I) got to the hospital in time for me to pass out in a wheelchair just inside the emergency room doors. That was nearly 23 years ago.
Two months later I gave birth to a beautiful boy and I still find myself winging it.
My son has grown up to be an amazing young man. He loves his job, attends acting classes, hopes to put his own musical on Broadway, and doesn’t seem to mind that he has an extra chromosome in his DNA.
I didn’t know how to raise a child with Down syndrome any more than I knew how to drive a stick-shift. But we’ve cruised through the years, pushed over a few roadblocks and taken several detours. We’ve learned many lessons that have been more special than the needs.
The stories from the early years and the joys and challenges of today are featured in the Grown Ups & Downs blog. Check out some of the resources and on-line friends we’ve made. Wander back to the middle-ages and meet a special Prince from the forthcoming novel The Innocent Prince. And, of course, join the conversation on any of our social plugins.
See you soon,