In my ongoing rant about the shifting tide for sheltered workshops, here’s the next question: Does the mere existence of the sheltered workshop format limit options for those who will be better served by broader opportunities within the community? Yes, it appears to be the case. I can literally hear in my mind the […].. read more
So amazing – The more I know, the more there is to know. With every new convenience there is also a new distraction. With everything I do, there is more to do. Is it me? A few weeks ago I shared on Facebook my appreciation for the many young faces of children with Down syndrome […].. read more
To conclude my three part series, I shared on the website Medium.com The Answer Head on over to check it out -> Mardra Sikora Be Sociable, Share! Tweet.. read more
At 7 months pregnant, there came a night when I woke up in terrible pain. I climbed into our stick-shift car, which I did not know how to drive, and started down the road. It wasn’t pretty and probably didn’t sound too good, the car either, but we (the car and I) got to the hospital in time for me to pass out in a wheelchair just inside the emergency room doors. That was nearly 23 years ago.
Two months later I gave birth to a beautiful boy and I still find myself winging it.
My son has grown up to be an amazing young man. He loves his job, attends acting classes, hopes to put his own musical on Broadway, and doesn’t seem to mind that he has an extra chromosome in his DNA.
I didn’t know how to raise a child with Down syndrome any more than I knew how to drive a stick-shift. But we’ve cruised through the years, pushed over a few roadblocks and taken several detours. We’ve learned many lessons that have been more special than the needs.
The stories from the early years and the joys and challenges of today are featured in the Grown Ups & Downs blog. Check out some of the resources and on-line friends we’ve made. Wander back to the middle-ages and meet a special Prince from the forthcoming novel The Innocent Prince. And, of course, join the conversation on any of our social plugins.
See you soon,