Hello Friends, Here we go! Carlos Gonzalez Paired Up with Marcus Sikora for a Home-Run with the Global Down Syndrome Foundation The night game was a perfect cap to a big day that was, for me, full of reflection. I thought back to twenty-six years ago when, at the time of his birth, […].. read more
Yesterday, Hedgie’s Books and Toys in Bedford, IA, hosted a fun and well attended “End of the Summer Monster Bash” in honor of the last weekend before back to school. The event featured Black Day: The Monster Rock Band. Every reading and book event is unique. You never know who or how many people […].. read more
I inserted closed captioning – if it doesn’t default, be sure to click on it for Marcus’ speech. I think you can see, he had a great night! .. read more
It’s my birthday week and I’m contemplative. Having an August birthday comes with the “end of summer” and always feels a little like Lana’s, that “Summertime Sadness.” You know, melancholy with a touch of let’s-live-while-we-can feeling. (Plus it has the line, “You’re the best, baby” which, of course, makes me think Marcus wrote bits of […].. read more
At 7 months pregnant, there came a night when I woke up in terrible pain. I climbed into our stick-shift car, which I did not know how to drive, and started down the road. It wasn’t pretty and probably didn’t sound too good, the car either, but we (the car and I) got to the hospital in time for me to pass out in a wheelchair just inside the emergency room doors. That was nearly 23 years ago.
Two months later I gave birth to a beautiful boy and I still find myself winging it.
My son has grown up to be an amazing young man. He loves his job, attends acting classes, hopes to put his own musical on Broadway, and doesn’t seem to mind that he has an extra chromosome in his DNA.
I didn’t know how to raise a child with Down syndrome any more than I knew how to drive a stick-shift. But we’ve cruised through the years, pushed over a few roadblocks and taken several detours. We’ve learned many lessons that have been more special than the needs.
The stories from the early years and the joys and challenges of today are featured in the Grown Ups & Downs blog. Check out some of the resources and on-line friends we’ve made. Wander back to the middle-ages and meet a special Prince from the forthcoming novel The Innocent Prince. And, of course, join the conversation on any of our social plugins.
See you soon,