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The Video Of Marcus Speaking at the United Nations

For real. . . . If you want #BlackDayBook and Grown Ups and Downs updates, not too often – I promise, Join the Club here! . Here’s What We Said. Listening to Self-Advocates: Relate, Respond, and Amplify (Marcus parts in bold) Ladies and Gentlemen, I’m Marcus Wright Sikora.   I wrote a book called Black […].. read more

Here Are Links to the Huffington Post Blogs

Hello Friends, Here we go!   Everyone Needs Help A Gift From the Universe to Change the World Birth stories that are combined with diagnosis stories are almost always a mix of fear, motivation, maybe panic, and most often a deep well of newly discovered, unconditional love. The feeling, when I held my newborn son, […].. read more

Marcus & the Loud Mouths Festival

   Marcus enjoys both watching theatre and participating. It all began as a small child, when he would act out entire TV shows, movies, and ideas in a combination of pantomime and song. Now, as a young adult he pursues more public shows. The Ollie Webb Center in Omaha has a program called The Art […].. read more

On Becoming Marcus’ Mother

The sun shone in through the small hopper window near the ceiling. I woke up slowly and watched the sun beams that drifted to the floor. I knew it. I was a mother. From the outside I did not look…ready. In my heart, I was. I smiled. I quit smoking. The next week I went to the Doctor’s office for a pregnancy test. I didn’t bother buying one from the store because, well, as I said – I knew. The test came back negative. The nurse and I spoke a bit about why I thought I was pregnant, her head shook dismissively as she wrote in the chart. I began eating lemons, friends looked at me and shrugged. Three weeks later I bought a pregnancy test at the drug store and it confirmed my knowledge. I returned to the doctor. .. read more

Marcus’ Big Announcement Number Two (with video)

Hello Friends, Can you believe that the excitement keeps coming? Here’s another exciting event coming up:   From the Global Website: More about the Be Beautiful, Be Yourself Event here. And, the story of Marcus taking on the Universe, suitable for sharing, either here on the website or Here on the HuffPost.     If […].. read more

Welcome

Mardra&MarcusAt 7 months pregnant, there came a night when I woke up in terrible pain. I climbed into our stick-shift car, which I did not know how to drive, and started down the road. It wasn’t pretty and probably didn’t sound too good, the car either, but we (the car and I) got to the hospital in time for me to pass out in a wheelchair just inside the emergency room doors. That was nearly 23 years ago.

Two months later I gave birth to a beautiful boy and I still find myself winging it.

My son has grown up to be an amazing young man. He loves his job, attends acting classes, hopes to put his own musical on Broadway, and doesn’t seem to mind that he has an extra chromosome in his DNA.

I didn’t know how to raise a child with Down syndrome any more than I knew how to drive a stick-shift. But we’ve cruised through the years, pushed over a few roadblocks and taken several detours. We’ve learned many lessons that have been more special than the needs.

The stories from the early years and the joys and challenges of today are featured in the Grown Ups & Downs blog. Check out some of the resources and on-line friends we’ve made. Wander back to the middle-ages and meet a special Prince from the forthcoming novel The Innocent Prince. And, of course, join the conversation on any of our social plugins.

See you soon,

Mardra Sikora



Grown ups and downs

Grown ups and downs

Mother Nature gives, most of the time, about 9 months to prepare for a baby. Still, I had only a bassinet and a few baby blankets in preparation of my son’s birth.

The march of time gives us 21 years before our children are considered “adult.” My son is nearly 23 years old. He has Down syndrome and I may yet figure out “the system,” for better and worse.

For now we have 23 years of stories to tell and new lessons to learn every day. Join us out of curiosity, empathy, research. It’s all good.

We’re here to share and show that the lessons are more special than the needs...read more

The Innocent Prince

and other fiction...

Explore Carmus the Island Kingdom. Visit the Garden of Eden. Journey into the not –to-distant future where the value of life is predetermined by…

Sometimes there’s only time for something short, something you can read in a flash. Or poetry.

Enter the world of the fairies that, “…blossoms in green hues that begin as light as the daybreak and soon deepen to support the spectrum of color covering the land.”

Wait quietly under the willow tree anticipating the invisible storm, wait longingly to feel your pages turned, daydream a hero’s beginning and a hero’s end. Meet a story-teller, a healer, an orphan, a duke -

Words from all of these worlds come out from the shadows when you sign in to follow The Innocent Prince and other fiction....read more