Today I am going to try to explain myself, this website, its name and purpose, but not necessarily in that order. Not necessarily in any order, as a matter of fact. I think I’ll start with answering a few “why’s” instead. Why did I create this website? I created MardraSikora.com as a platform builder for […].. read more
Hello Friends, Here we go! What a Storyteller with Down Syndrome and Bedford Iowa Teach the World You Never Know… Every reading and book event is unique. You never know who or how many people will show up. It’s the nature of the book-promoting-beast. In this case, folks came from miles around, ready for Marcus […].. read more
You know what didn’t cross my mind in those hours after my son was born and nurses spoke in hushed tones while a social service worker hovered outside my hospital room…when certain family members chose to scoff at certain other family member’s expression of love over doom? The United Nations. On June 20th, 1990, I […].. read more
Guys guy GUYS! I don’t think I ever showed you this interview. A great podcast and video interview with two moms, plus Marcus (and me too.) One mom I’ve known virtually Ellen Stumbo. She has a beautiful blog, I’ve been lucky to guest on now and then. And now she and and Erin, another mom, […].. read more
The Bates Motel asks: “What mysteries do you want to see unraveled for the future for your child with Down syndrome?” That’s a heavy question and one that I hesitate to answer via the internet. But that’s why we’re here, right? To shed light and truth. Yes, it is. SO, I will continue and you can and should look around at the blog-hop links below. This community is nothing if not prolific. :) I purposefully waited to write my thoughts until after attending a webinar provided by the Global Down Syndrome Foundation and DADS (Dads Appreciating Down Syndrome) about research and Down syndrome. Two primary scientists spoke, I think most of it was English though I can’t actually confirm. Some of the words could have been Greek. That’s a joke. Mostly. The information included a lot of talk about chromosomes, and genes, and cells and proteins, especially the amyloid precursor protein. This particular protein is a culprit and connecting factor between Down syndrome and Alzheimer’s disease. That’s the way I heard it anyway. ... But most of that mystery, I must leave to science. I have a squishier wish than that..... read more
At 7 months pregnant, there came a night when I woke up in terrible pain. I climbed into our stick-shift car, which I did not know how to drive, and started down the road. It wasn’t pretty and probably didn’t sound too good, the car either, but we (the car and I) got to the hospital in time for me to pass out in a wheelchair just inside the emergency room doors. That was nearly 23 years ago.
Two months later I gave birth to a beautiful boy and I still find myself winging it.
My son has grown up to be an amazing young man. He loves his job, attends acting classes, hopes to put his own musical on Broadway, and doesn’t seem to mind that he has an extra chromosome in his DNA.
I didn’t know how to raise a child with Down syndrome any more than I knew how to drive a stick-shift. But we’ve cruised through the years, pushed over a few roadblocks and taken several detours. We’ve learned many lessons that have been more special than the needs.
The stories from the early years and the joys and challenges of today are featured in the Grown Ups & Downs blog. Check out some of the resources and on-line friends we’ve made. Wander back to the middle-ages and meet a special Prince from the forthcoming novel The Innocent Prince. And, of course, join the conversation on any of our social plugins.
See you soon,