Hello Friends, Here we go! A Mother’s Tears Dear Mothers of Color and Mothers of Children of Color, To start, I am a Midwestern white woman and I do not claim to know your story. Truly, I know this among so much else I do not know. Whether you are my sister, my friend or […].. read more
Alright Friends – I mean it. Step 1) Watch this Video Step 2) Go to Indie GoGo Check out this project, Learning to Drive. Step 3) Give yourself a gift. Donate what you can. *For example, Only $30 donation helps the cause and get YOU a copy of the movie and soundtrack (digital) […].. read more
In which I rant about a few of our favorite Christmas TV tales and their isms. Also, I learned a new word. Ableism Alright, let’s just get this out of the way: “Rudolph the Red Nosed Reindeer.” Yes, even as a child I was horrified. Horrified by Santa. What a jerk. He says, in words, […].. read more
65.7 million caregivers (29% of the U.S. adult population) provide care to someone who is ill, disabled or aged. So, from this I am going to extrapolate that it is very likely that you, or someone you know, has taken on the role of caregiver to some extent. Are you surprised? Are there “closet caregivers” […].. read more
At 7 months pregnant, there came a night when I woke up in terrible pain. I climbed into our stick-shift car, which I did not know how to drive, and started down the road. It wasn’t pretty and probably didn’t sound too good, the car either, but we (the car and I) got to the hospital in time for me to pass out in a wheelchair just inside the emergency room doors. That was nearly 23 years ago.
Two months later I gave birth to a beautiful boy and I still find myself winging it.
My son has grown up to be an amazing young man. He loves his job, attends acting classes, hopes to put his own musical on Broadway, and doesn’t seem to mind that he has an extra chromosome in his DNA.
I didn’t know how to raise a child with Down syndrome any more than I knew how to drive a stick-shift. But we’ve cruised through the years, pushed over a few roadblocks and taken several detours. We’ve learned many lessons that have been more special than the needs.
The stories from the early years and the joys and challenges of today are featured in the Grown Ups & Downs blog. Check out some of the resources and on-line friends we’ve made. Wander back to the middle-ages and meet a special Prince from the forthcoming novel The Innocent Prince. And, of course, join the conversation on any of our social plugins.
See you soon,