Hello Friends, Here we go! Carlos Gonzalez Paired Up with Marcus Sikora for a Home-Run with the Global Down Syndrome Foundation The night game was a perfect cap to a big day that was, for me, full of reflection. I thought back to twenty-six years ago when, at the time of his birth, […].. read more
I said Marcus would Never… Five years ago I wrote in an article that published in the Omaha World Herald that Marcus would never live independently. I did. I said it like an undeniable fact. Then Again… Two years ago I wrote, “Marcus Talks about Moving Out.” This last weekend I recognized in him even […].. read more
OK – so maybe it was nearly a month ago, we’ve been busy. Let’s sit like new friends over coffee and I’ll tell you about my son. He turns 26 today and he’s had a really big year. I don’t want to be a show-off, but…I am his mom and I am proud. Like […].. read more
First Pitch Last night Marcus threw the “first pitch” at our local baseball field, home of the Omaha Storm Chasers. Our DSA, the Down Syndrome Alliance of the Midlands, invited him to represent. (He took the position seriously check out the fun video at the end of this post of his prep and pitch.) This Summer […].. read more
At 7 months pregnant, there came a night when I woke up in terrible pain. I climbed into our stick-shift car, which I did not know how to drive, and started down the road. It wasn’t pretty and probably didn’t sound too good, the car either, but we (the car and I) got to the hospital in time for me to pass out in a wheelchair just inside the emergency room doors. That was nearly 23 years ago.
Two months later I gave birth to a beautiful boy and I still find myself winging it.
My son has grown up to be an amazing young man. He loves his job, attends acting classes, hopes to put his own musical on Broadway, and doesn’t seem to mind that he has an extra chromosome in his DNA.
I didn’t know how to raise a child with Down syndrome any more than I knew how to drive a stick-shift. But we’ve cruised through the years, pushed over a few roadblocks and taken several detours. We’ve learned many lessons that have been more special than the needs.
The stories from the early years and the joys and challenges of today are featured in the Grown Ups & Downs blog. Check out some of the resources and on-line friends we’ve made. Wander back to the middle-ages and meet a special Prince from the forthcoming novel The Innocent Prince. And, of course, join the conversation on any of our social plugins.
See you soon,