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Here Are Links to the Huffington Post Blogs

Hello Friends, Here we go! What a Storyteller with Down Syndrome and Bedford Iowa Teach the World You Never Know… Every reading and book event is unique. You never know who or how many people will show up. It’s the nature of the book-promoting-beast. In this case, folks came from miles around, ready for Marcus […].. read more

Year End and Christmas Letter Time!

Christmas letter time!! Every time I create a Christmas letter, I think about all of you. I think about all I wish you were telling me about your life, your families, your year. Some of you send Christmas letters, too. Which I love and enjoy! This year I’m going to make it really easy on […].. read more

On Rainy Days and Learning to Live in the Moments

. You never know… Sitting with another mother at the Be Beautiful, Be Yourself Fashion Show, talking about Marcus’ and my crazy schedule this year. I told her, “I debated whether we should push it and do this. So much else going on. But then I thought, Don’t wait. You never know what the next […].. read more

Last Weekend, We Were All Beautiful, with Video to Prove it

Last Sunday morning I “wrote out” some of the preceding three days’ amazingness. Unsuccessfully. Bullet point version: Wed night after work: Marcus and I flew to Denver. Thursday morning: Marcus went on Live TV.  Friday Morning: Marcus and I both gave blood to the Human Trisome Project.  Friday Night: VIP Party with super cool and […].. read more

Welcome

Mardra&MarcusAt 7 months pregnant, there came a night when I woke up in terrible pain. I climbed into our stick-shift car, which I did not know how to drive, and started down the road. It wasn’t pretty and probably didn’t sound too good, the car either, but we (the car and I) got to the hospital in time for me to pass out in a wheelchair just inside the emergency room doors. That was nearly 23 years ago.

Two months later I gave birth to a beautiful boy and I still find myself winging it.

My son has grown up to be an amazing young man. He loves his job, attends acting classes, hopes to put his own musical on Broadway, and doesn’t seem to mind that he has an extra chromosome in his DNA.

I didn’t know how to raise a child with Down syndrome any more than I knew how to drive a stick-shift. But we’ve cruised through the years, pushed over a few roadblocks and taken several detours. We’ve learned many lessons that have been more special than the needs.

The stories from the early years and the joys and challenges of today are featured in the Grown Ups & Downs blog. Check out some of the resources and on-line friends we’ve made. Wander back to the middle-ages and meet a special Prince from the forthcoming novel The Innocent Prince. And, of course, join the conversation on any of our social plugins.

See you soon,

Mardra Sikora



Grown ups and downs

Grown ups and downs

Mother Nature gives, most of the time, about 9 months to prepare for a baby. Still, I had only a bassinet and a few baby blankets in preparation of my son’s birth.

The march of time gives us 21 years before our children are considered “adult.” My son is nearly 23 years old. He has Down syndrome and I may yet figure out “the system,” for better and worse.

For now we have 23 years of stories to tell and new lessons to learn every day. Join us out of curiosity, empathy, research. It’s all good.

We’re here to share and show that the lessons are more special than the needs...read more

The Innocent Prince

and other fiction...

Explore Carmus the Island Kingdom. Visit the Garden of Eden. Journey into the not –to-distant future where the value of life is predetermined by…

Sometimes there’s only time for something short, something you can read in a flash. Or poetry.

Enter the world of the fairies that, “…blossoms in green hues that begin as light as the daybreak and soon deepen to support the spectrum of color covering the land.”

Wait quietly under the willow tree anticipating the invisible storm, wait longingly to feel your pages turned, daydream a hero’s beginning and a hero’s end. Meet a story-teller, a healer, an orphan, a duke -

Words from all of these worlds come out from the shadows when you sign in to follow The Innocent Prince and other fiction....read more