For the first 21 years or so of Marcus’ life, “Down syndrome” didn’t really come up, and I kept our privacy setting as restricted. Not that I was hiding, I just wasn’t sharing. Why? Well, one reason is because most of those years were pretty, how shall I say this? Boring. Not to me, you […].. read more
Hello Friends, Here we go! According to Jenkins, Best to Keep a Person With Down Syndrome at Home Last year in January a man who looked a little like my son died at the hands of three police officers moonlighting as security guards. Those of us in the community, people who love someone with similar […].. read more
That time of year when my brains start seeping out of my ears. No, it’s not the Zombie Apocalypse or Halloween Voodoo, its #DSAM2014 and I am overflowing. How about you? Well, it’s not over yet, friends, so let’s throw this big one into the mix. Stephanie at The Road is trying to bring into […].. read more
Hello Friends, Last Friday night Marcus want to a Halloween dance that is sponsored annually by a local organization that serves adults with developmental disabilities, The Ollie Webb Center. He looked pretty sharp. Exhibit A: He’s an odd bird about these sort of events. He really wants to go and looks forward to it. Then […].. read more
Yesterday I learned a little bit about a man with Down syndrome named Stephen, and his mother, who wished he had never been born. I don’t know much except what I read from a tabloid article written by his mother. When Stephen was very young, about three years old he cried in the night, […].. read more
At 7 months pregnant, there came a night when I woke up in terrible pain. I climbed into our stick-shift car, which I did not know how to drive, and started down the road. It wasn’t pretty and probably didn’t sound too good, the car either, but we (the car and I) got to the hospital in time for me to pass out in a wheelchair just inside the emergency room doors. That was nearly 23 years ago.
Two months later I gave birth to a beautiful boy and I still find myself winging it.
My son has grown up to be an amazing young man. He loves his job, attends acting classes, hopes to put his own musical on Broadway, and doesn’t seem to mind that he has an extra chromosome in his DNA.
I didn’t know how to raise a child with Down syndrome any more than I knew how to drive a stick-shift. But we’ve cruised through the years, pushed over a few roadblocks and taken several detours. We’ve learned many lessons that have been more special than the needs.
The stories from the early years and the joys and challenges of today are featured in the Grown Ups & Downs blog. Check out some of the resources and on-line friends we’ve made. Wander back to the middle-ages and meet a special Prince from the forthcoming novel The Innocent Prince. And, of course, join the conversation on any of our social plugins.
See you soon,