Hello Friends, Here we go! On March 21st We Celebrate The Good Life On a recent road-trip to central Nebraska, my son Marcus leaned back and sighed, “This is the good life.” That particular weekend there was much ado about Nebraska’s slogan: “The Good Life.” So I smiled in agreement while my mind wandered […].. read more
Tonight We get to see the short film Menschen on the big screen. A little nervous, for my sensitive soul, but also looking forward to seeing our new friend Connor and his family and to be there when this movie is shared in my community. I’m pleased about that. I’m also nervous and excited for Marcus to see […].. read more
For the first 21 years or so of Marcus’ life, “Down syndrome” didn’t really come up, and I kept our privacy setting as restricted. Not that I was hiding, I just wasn’t sharing. Why? Well, one reason is because most of those years were pretty, how shall I say this? Boring. Not to me, you […].. read more
<3-21 World Down Syndrome Day!!!!!! Seriously. I love that 3-21 is World Down Syndrome Day. This year 3-21 falls on a Saturday and you know what that means…Stuff to do all weekend long! This week is a huge gear up and we are all Go Go Go! Who? What? Where? How can you join […].. read more
At 7 months pregnant, there came a night when I woke up in terrible pain. I climbed into our stick-shift car, which I did not know how to drive, and started down the road. It wasn’t pretty and probably didn’t sound too good, the car either, but we (the car and I) got to the hospital in time for me to pass out in a wheelchair just inside the emergency room doors. That was nearly 23 years ago.
Two months later I gave birth to a beautiful boy and I still find myself winging it.
My son has grown up to be an amazing young man. He loves his job, attends acting classes, hopes to put his own musical on Broadway, and doesn’t seem to mind that he has an extra chromosome in his DNA.
I didn’t know how to raise a child with Down syndrome any more than I knew how to drive a stick-shift. But we’ve cruised through the years, pushed over a few roadblocks and taken several detours. We’ve learned many lessons that have been more special than the needs.
The stories from the early years and the joys and challenges of today are featured in the Grown Ups & Downs blog. Check out some of the resources and on-line friends we’ve made. Wander back to the middle-ages and meet a special Prince from the forthcoming novel The Innocent Prince. And, of course, join the conversation on any of our social plugins.
See you soon,