banner_imgbanner_img Mardra SikoraMardra Sikora

Marcus’ New Jeans and Fashion Show Auditions

  Today – we’re going to talk about fashion. Marcus’ new Downs Designs jeans and his model audition I am not a talented “Suzie-homemaker,” which I perceive as someone who can wallpaper and sew and serves a “complete breakfast” every morning, and so on. When house-shopping I said to the realtor, “If the word potential […].. read more

Lesson from the Inside Out Week

Last Sunday I got one of those calls that turn your life inside out for a while. It, fortunately, did not end in tragedy – just chaos for my plans. Ahhh plans. Such a neat idea. In the interest of only 15 minutes for the Free Write Friday, I’ll skip to the short version which […].. read more

#NeverAlone and Down Syndrome Diagnosis

June 20, 1990 I had been awake for well over 24 hours, the little man having taken his time to push his way from my body’s protection. G, Marcus’ original dad, was in the room with me when the doctor came in and said, “Down syndrome.” I do not remember him being brash or unkind. […].. read more

Currently it’s all about Deadlines

Currently I’m managing to keep my nose above water with deadlines and finances – but I wish I was a better swimmer. I know, I know, if I didn’t jump into the deep-end and take on the rough waters every time, maybe I would be sailing along instead. I can’t help it! I just know […].. read more

Welcome

Mardra&MarcusAt 7 months pregnant, there came a night when I woke up in terrible pain. I climbed into our stick-shift car, which I did not know how to drive, and started down the road. It wasn’t pretty and probably didn’t sound too good, the car either, but we (the car and I) got to the hospital in time for me to pass out in a wheelchair just inside the emergency room doors. That was nearly 23 years ago.

Two months later I gave birth to a beautiful boy and I still find myself winging it.

My son has grown up to be an amazing young man. He loves his job, attends acting classes, hopes to put his own musical on Broadway, and doesn’t seem to mind that he has an extra chromosome in his DNA.

I didn’t know how to raise a child with Down syndrome any more than I knew how to drive a stick-shift. But we’ve cruised through the years, pushed over a few roadblocks and taken several detours. We’ve learned many lessons that have been more special than the needs.

The stories from the early years and the joys and challenges of today are featured in the Grown Ups & Downs blog. Check out some of the resources and on-line friends we’ve made. Wander back to the middle-ages and meet a special Prince from the forthcoming novel The Innocent Prince. And, of course, join the conversation on any of our social plugins.

See you soon,

Mardra Sikora

Be Sociable, Share!


Grown ups and downs

Grown ups and downs

Mother Nature gives, most of the time, about 9 months to prepare for a baby. Still, I had only a bassinet and a few baby blankets in preparation of my son’s birth.

The march of time gives us 21 years before our children are considered “adult.” My son is nearly 23 years old. He has Down syndrome and I may yet figure out “the system,” for better and worse.

For now we have 23 years of stories to tell and new lessons to learn every day. Join us out of curiosity, empathy, research. It’s all good.

We’re here to share and show that the lessons are more special than the needs...read more

The Innocent Prince

and other fiction...

Explore Carmus the Island Kingdom. Visit the Garden of Eden. Journey into the not –to-distant future where the value of life is predetermined by…

Sometimes there’s only time for something short, something you can read in a flash. Or poetry.

Enter the world of the fairies that, “…blossoms in green hues that begin as light as the daybreak and soon deepen to support the spectrum of color covering the land.”

Wait quietly under the willow tree anticipating the invisible storm, wait longingly to feel your pages turned, daydream a hero’s beginning and a hero’s end. Meet a story-teller, a healer, an orphan, a duke -

Words from all of these worlds come out from the shadows when you sign in to follow The Innocent Prince and other fiction....read more