Hello Friends, Here we go! When it Comes to Sharing Online Excerpt: ” Whether blog, social media, short form, long form, articles, fiction or non-fiction, our combined stories online are documenting history in real time by more people than have ever done in the history of mankind. This combination and diversity of voices […].. read more
What I wanted to know for just five minutes on June 21st is what I should be trying to say now. Breathe. Embrace. Capture. Laughter. A love like you’ve never known will hold you for the rest of your days. Many people live their whole lives not knowing why they were born, June 21st 1990 was a blur but it was only one day after you found your purpose. It was the day after you found out your beautiful son was born with Down syndrome. .. read more
. “What is your goal?” The keynote speaker, Dakota Johns, asked in his speech, then he asked us to share this goal with those sitting around us. One person at our table said, “To write a book,” another said, “Take a family vacation.” My son, Marcus, said, “To win a Tony Award.” This […].. read more
Yes, the day of Marcus’ first photo shoot was a little stressful, in a good way. Read all about how it went here: Carlos Gonzalez Paired Up with Marcus Sikora for a Home-Run with the Global Down Syndrome Foundation And here’s the Behind the scene’s video! More about all of this to come!.. read more
At 7 months pregnant, there came a night when I woke up in terrible pain. I climbed into our stick-shift car, which I did not know how to drive, and started down the road. It wasn’t pretty and probably didn’t sound too good, the car either, but we (the car and I) got to the hospital in time for me to pass out in a wheelchair just inside the emergency room doors. That was nearly 23 years ago.
Two months later I gave birth to a beautiful boy and I still find myself winging it.
My son has grown up to be an amazing young man. He loves his job, attends acting classes, hopes to put his own musical on Broadway, and doesn’t seem to mind that he has an extra chromosome in his DNA.
I didn’t know how to raise a child with Down syndrome any more than I knew how to drive a stick-shift. But we’ve cruised through the years, pushed over a few roadblocks and taken several detours. We’ve learned many lessons that have been more special than the needs.
The stories from the early years and the joys and challenges of today are featured in the Grown Ups & Downs blog. Check out some of the resources and on-line friends we’ve made. Wander back to the middle-ages and meet a special Prince from the forthcoming novel The Innocent Prince. And, of course, join the conversation on any of our social plugins.
See you soon,