1 in 2000 Here’s the deal, as you may recall, I was 19 years old when Marcus was born. That’s 1 in 2000 odds for me to have a baby with Down syndrome. Celebrate! Marcus will be 25 in June. As it is, we try to balance living life to the fullest and making […].. read more
Hello Friends, Here we go! On March 21st We Celebrate The Good Life On a recent road-trip to central Nebraska, my son Marcus leaned back and sighed, “This is the good life.” That particular weekend there was much ado about Nebraska’s slogan: “The Good Life.” So I smiled in agreement while my mind wandered […].. read more
OK! We have won the lottery with this guest! I recently virtually met Sandra because, of all things, this photo of Sean and his birthday playing roulette on the blog, Who’s the Slow Learner? Looks fun, doesn’t it? Well, it helped me to approach Sandra about the odds. And here’s where you all get lucky! […].. read more
Our next guest in the What Are the Odds game is another new friend who I clearly have so much in common with 1) We both have an adult son with Down syndrome. 2) We both had endometriosis, it sucked, we’ll leave it at that and 3) we both have 2 cats. From there, well…the […].. read more
At 7 months pregnant, there came a night when I woke up in terrible pain. I climbed into our stick-shift car, which I did not know how to drive, and started down the road. It wasn’t pretty and probably didn’t sound too good, the car either, but we (the car and I) got to the hospital in time for me to pass out in a wheelchair just inside the emergency room doors. That was nearly 23 years ago.
Two months later I gave birth to a beautiful boy and I still find myself winging it.
My son has grown up to be an amazing young man. He loves his job, attends acting classes, hopes to put his own musical on Broadway, and doesn’t seem to mind that he has an extra chromosome in his DNA.
I didn’t know how to raise a child with Down syndrome any more than I knew how to drive a stick-shift. But we’ve cruised through the years, pushed over a few roadblocks and taken several detours. We’ve learned many lessons that have been more special than the needs.
The stories from the early years and the joys and challenges of today are featured in the Grown Ups & Downs blog. Check out some of the resources and on-line friends we’ve made. Wander back to the middle-ages and meet a special Prince from the forthcoming novel The Innocent Prince. And, of course, join the conversation on any of our social plugins.
See you soon,