Hello readers, as you can imagine our excitement grows with every day closer to our deadline. As of today we are almost halfway to our five thousand dollar goal and have twenty-five days left on the clock. This past week I was fortunate enough to watch Patti Saylor accept the honor of Advocate of the Year from the National Down’s Syndrome Society. The evening was bittersweet and full of reminders of the steps taken to transcend her son’s death. .. read more
As a mother, I… I hardly have the words, and as you have seen, that’s something. Whenever I pray to whatever it is I am praying to, I pray I never have to show her strength, her commitment, her ambition to continue fighting. I did not want to share this on the same page as […].. read more
World Down Syndrome Day is 3-21 “I love holidays that say what they are!” – My husband. This year I am excited to be a part of the education and advocacy activities surrounding World Down Syndrome Day. Woohoo! Rule #1 in writing and presenting is: “Share what you know.” So I’m talking about - talking about […].. read more
At 7 months pregnant, there came a night when I woke up in terrible pain. I climbed into our stick-shift car, which I did not know how to drive, and started down the road. It wasn’t pretty and probably didn’t sound too good, the car either, but we (the car and I) got to the hospital in time for me to pass out in a wheelchair just inside the emergency room doors. That was nearly 23 years ago.
Two months later I gave birth to a beautiful boy and I still find myself winging it.
My son has grown up to be an amazing young man. He loves his job, attends acting classes, hopes to put his own musical on Broadway, and doesn’t seem to mind that he has an extra chromosome in his DNA.
I didn’t know how to raise a child with Down syndrome any more than I knew how to drive a stick-shift. But we’ve cruised through the years, pushed over a few roadblocks and taken several detours. We’ve learned many lessons that have been more special than the needs.
The stories from the early years and the joys and challenges of today are featured in the Grown Ups & Downs blog. Check out some of the resources and on-line friends we’ve made. Wander back to the middle-ages and meet a special Prince from the forthcoming novel The Innocent Prince. And, of course, join the conversation on any of our social plugins.
See you soon,