Today let’s talk about the newly published book, The Parent’s Guide to Down Syndrome. (Insert quiet side squeal of delight. Clear throat. Begin again.) Dear New Parents, In the spring of 2015, the original title suggested by Adams Media included the phrase: “new parents.” So as Jen and I began our drafts, new parents […].. read more
Hello Friends, Here we go! How My Son Chooses to Teach Down Syndrome Awareness As only Marcus can, he taught the kids (and me) while we toured in October. This has been my dilemma as Marcus and I have met each new group. Should we talk about Down syndrome? And to what extent? It is, […].. read more
This Words in the World Wed is a reviewer-so-far-wrap-up And More! First! We need your help. Please – Please – Please help us spread the word by “supporting’ us on this Thunderclap Campaign. It’s important, when you get to the page, to click through the “support” buttons. Check it out here: Now – Onto […].. read more
. There’s a billboard in our area that says, Live Fearless. It gets under my skin, it irritates me, and I argue with it the rest of the drive. Before we dive into the conceptual, first I have to get this off my chest: this phrase is also, technically, incorrect. Live is a verb and […].. read more
2015 was a huge learning year. With Marcus’ book and my own, with touring, with marketing and publishing, plus with life in general… And, of course, with craft. Last year I moderated a writer’s panel and gave out the prompt, *Write a letter to yourself from an author you respect.* Dear Writers, listen up to […].. read more
At 7 months pregnant, there came a night when I woke up in terrible pain. I climbed into our stick-shift car, which I did not know how to drive, and started down the road. It wasn’t pretty and probably didn’t sound too good, the car either, but we (the car and I) got to the hospital in time for me to pass out in a wheelchair just inside the emergency room doors. That was nearly 23 years ago.
Two months later I gave birth to a beautiful boy and I still find myself winging it.
My son has grown up to be an amazing young man. He loves his job, attends acting classes, hopes to put his own musical on Broadway, and doesn’t seem to mind that he has an extra chromosome in his DNA.
I didn’t know how to raise a child with Down syndrome any more than I knew how to drive a stick-shift. But we’ve cruised through the years, pushed over a few roadblocks and taken several detours. We’ve learned many lessons that have been more special than the needs.
The stories from the early years and the joys and challenges of today are featured in the Grown Ups & Downs blog. Check out some of the resources and on-line friends we’ve made. Wander back to the middle-ages and meet a special Prince from the forthcoming novel The Innocent Prince. And, of course, join the conversation on any of our social plugins.
See you soon,