Hello Friends, Here we go! How My Son Chooses to Teach Down Syndrome Awareness As only Marcus can, he taught the kids (and me) while we toured in October. This has been my dilemma as Marcus and I have met each new group. Should we talk about Down syndrome? And to what extent? It is, […].. read more
A small, but persistent group made up primarily of parents, shout for justice and recourse. Another group, also loud in their way but with unknown connections or intentions, troll articles such as those aforementioned and spread their venom and ignorance. These trolls are allowed hate language in comments even on news sources .. read more
The night before Marcus’ heart surgery, while he lay in my arms, I almost fled. I almost stole him away in the night from the place where I knew they would cut him open, and pull from his body his beating heart. Was I right to risk what years I could have with him for […].. read more
There are many awesome moments over the last month watching Marcus, seeing the kids, meeting parents, and on. The one today, falls into the “and on” category. I was able to attend the morning sessions of the 4th Annual Down Syndrome Symposium. The keynote speaker, Ira Lott, spoke on “The Relationship between Down syndrome and […].. read more
At 7 months pregnant, there came a night when I woke up in terrible pain. I climbed into our stick-shift car, which I did not know how to drive, and started down the road. It wasn’t pretty and probably didn’t sound too good, the car either, but we (the car and I) got to the hospital in time for me to pass out in a wheelchair just inside the emergency room doors. That was nearly 23 years ago.
Two months later I gave birth to a beautiful boy and I still find myself winging it.
My son has grown up to be an amazing young man. He loves his job, attends acting classes, hopes to put his own musical on Broadway, and doesn’t seem to mind that he has an extra chromosome in his DNA.
I didn’t know how to raise a child with Down syndrome any more than I knew how to drive a stick-shift. But we’ve cruised through the years, pushed over a few roadblocks and taken several detours. We’ve learned many lessons that have been more special than the needs.
The stories from the early years and the joys and challenges of today are featured in the Grown Ups & Downs blog. Check out some of the resources and on-line friends we’ve made. Wander back to the middle-ages and meet a special Prince from the forthcoming novel The Innocent Prince. And, of course, join the conversation on any of our social plugins.
See you soon,