Menschen: a Work of Art Menschen is a live action short film that packs a complex story into under 30 minutes time. The story takes place at the end of WWII, the troops are weary and history is about to declare the victors. What we are not reminded of in textbooks: on both sides of […].. read more
Hello Friends, Here we go! The Importance of Someone “Like Me” in the Movies After a screening of the live action short film Menschen, Sarah Lotfi was approached by a young woman who exclaimed, “That’s me!” The young woman with Down syndrome referred to her resemblance to the costar of the film, Connor Long. Seeing […].. read more
What is this Free Write Friday of which You Speak? For those of you new to the party, Fridays I do a little “Free Write.” Timer has been set and I ramble on about the week, or whatever, for 15 minutes. Then I spell check, add a photo or two as applicable, and hit *publish.* […].. read more
Have you ever felt almost outside of yourself? Like your spirit moved? Have you ever felt simultaneously connected and disconnected in a way that something, somewhere, what was inside of you is now…Am I getting too spooky for you? It’s hard to articulate this sort of feeling. For me, it happens with only one medium […].. read more
At 7 months pregnant, there came a night when I woke up in terrible pain. I climbed into our stick-shift car, which I did not know how to drive, and started down the road. It wasn’t pretty and probably didn’t sound too good, the car either, but we (the car and I) got to the hospital in time for me to pass out in a wheelchair just inside the emergency room doors. That was nearly 23 years ago.
Two months later I gave birth to a beautiful boy and I still find myself winging it.
My son has grown up to be an amazing young man. He loves his job, attends acting classes, hopes to put his own musical on Broadway, and doesn’t seem to mind that he has an extra chromosome in his DNA.
I didn’t know how to raise a child with Down syndrome any more than I knew how to drive a stick-shift. But we’ve cruised through the years, pushed over a few roadblocks and taken several detours. We’ve learned many lessons that have been more special than the needs.
The stories from the early years and the joys and challenges of today are featured in the Grown Ups & Downs blog. Check out some of the resources and on-line friends we’ve made. Wander back to the middle-ages and meet a special Prince from the forthcoming novel The Innocent Prince. And, of course, join the conversation on any of our social plugins.
See you soon,