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Our Story of Down syndrome: The Short Version

For the first 21 years or so of Marcus’ life,  “Down syndrome” didn’t really come up, and I kept our privacy setting as restricted. Not that I was hiding, I just wasn’t sharing. Why? Well, one reason is because most of those years were pretty, how shall I say this? Boring. Not to me, you […].. read more

Here Are Links to the Huffington Post Blogs

Hello Friends, Here we go!   On March 21st We Celebrate The Good Life On a recent road-trip to central Nebraska, my son Marcus leaned back and sighed, “This is the good life.” That particular weekend there was much ado about Nebraska’s slogan: “The Good Life.” So I smiled in agreement while my mind wandered […].. read more

Stark (1 for National Poetry Month)

April is National Poetry Month. I wrote this a few years back, in an April as I recall, but I like it. I hope you do too. . .. read more

Brushfield Spots – The Coolest Genetic Trait Ever

I was one of those moms that stared at her baby constantly. I marveled at him. Luckily, my friends also enjoyed this pastime. Maybe because we were broke. Staring at Marcus staring at the ceiling fan, or lying next to him and staring at the ceiling fan, was a hobby we could all afford. Also because he was beautiful, he smiled readily, and his eyes sparkled. I watched his deep blue eyes, expecting them to change into brown, or hazel, or in-between-green-and-something-else, like mine. After he turned a year old, I celebrated the knowledge: Those blue eyes are here to stay! A few months later he was at an evaluation of some sort with several clinical and scary looking people and one of them used the words: “Brushfield spots.” .. read more

Menschen, Arc, and More Marcus

So we got to see Menschen the movie on the big screen. I wrote my original review and all subsequent rants after seeing it on the small screen of my computer. Seeing it in a theater environment, as it was intended, moved me in new ways. One reason, because I felt like, up to this […].. read more

Welcome

Mardra&MarcusAt 7 months pregnant, there came a night when I woke up in terrible pain. I climbed into our stick-shift car, which I did not know how to drive, and started down the road. It wasn’t pretty and probably didn’t sound too good, the car either, but we (the car and I) got to the hospital in time for me to pass out in a wheelchair just inside the emergency room doors. That was nearly 23 years ago.

Two months later I gave birth to a beautiful boy and I still find myself winging it.

My son has grown up to be an amazing young man. He loves his job, attends acting classes, hopes to put his own musical on Broadway, and doesn’t seem to mind that he has an extra chromosome in his DNA.

I didn’t know how to raise a child with Down syndrome any more than I knew how to drive a stick-shift. But we’ve cruised through the years, pushed over a few roadblocks and taken several detours. We’ve learned many lessons that have been more special than the needs.

The stories from the early years and the joys and challenges of today are featured in the Grown Ups & Downs blog. Check out some of the resources and on-line friends we’ve made. Wander back to the middle-ages and meet a special Prince from the forthcoming novel The Innocent Prince. And, of course, join the conversation on any of our social plugins.

See you soon,

Mardra Sikora

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Grown ups and downs

Grown ups and downs

Mother Nature gives, most of the time, about 9 months to prepare for a baby. Still, I had only a bassinet and a few baby blankets in preparation of my son’s birth.

The march of time gives us 21 years before our children are considered “adult.” My son is nearly 23 years old. He has Down syndrome and I may yet figure out “the system,” for better and worse.

For now we have 23 years of stories to tell and new lessons to learn every day. Join us out of curiosity, empathy, research. It’s all good.

We’re here to share and show that the lessons are more special than the needs...read more

The Innocent Prince

and other fiction...

Explore Carmus the Island Kingdom. Visit the Garden of Eden. Journey into the not –to-distant future where the value of life is predetermined by…

Sometimes there’s only time for something short, something you can read in a flash. Or poetry.

Enter the world of the fairies that, “…blossoms in green hues that begin as light as the daybreak and soon deepen to support the spectrum of color covering the land.”

Wait quietly under the willow tree anticipating the invisible storm, wait longingly to feel your pages turned, daydream a hero’s beginning and a hero’s end. Meet a story-teller, a healer, an orphan, a duke -

Words from all of these worlds come out from the shadows when you sign in to follow The Innocent Prince and other fiction....read more